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COSP Multi-Site Research Design Overview
Chapter 8: Site Visits


 8.1               Purpose
 8.2               Timing
 8.3               Organization
 8.4               Traditional Mental Health Context
 8.5               Site Visit Reports

8.1 Purpose

Site visits provide opportunities to gain insight and a realistic understanding of a program’s operation, as well as other issues that might affect the Consumer-Operated Services Program (COSP) Multi-site Research Initiative. The purposes of the initial site visits are:

    To collect information about how services are implemented and the context in which they operate.

    To collect information that can be incorporated into the implementation/fidelity study, to be conducted in Years 3 and 4.

    To pilot measures developed to assess fidelity.

    To identify issues that might affect the research protocol, results, or interpretation of the results.

    The fidelity/implementation study will include another round of site visits, the purposes of which will include all of those specified above, as well as providing reliable ratings of each common ingredient measures for each participating COSP.

    Key issues that interest the site visitors include:

    Similarities and differences between the traditional service(s) and COSP. We are interested both in similarities and differences in services provided, governance structure, and philosophical orientation to the provision of services.

    Similarities and differences between the three COSP models. To what extent is there overlap in the services provided by consumer-run drop in centers, peer support programs, and education/advocacy programs?

    Possible inconsistencies between implementation and each site-specific logic model. We want to ensure that the logic model for the program accurately reflects what is actually happening on site, and that important program elements are neither accidentally omitted.

    Research design issues that may be inconsistent with the protocol. This will involve a review of proposed and working randomization procedures, inclusion/exclusion criteria, recruitment procedures, etc.

8.2 Timing

    The initial round of site visits will be completed in Year 2 (1999-2000) of the COSP Initiative. Subsequent site visits, conducted in conjunction with the fidelity/implementation study, will take place in Years 3 and 4 (2001-2002).

  1. 8.3 Organization of Site Visits

  2. Personnel. Each team of site visitors will include two to three site visitors. The team will include one researcher from ROW Sciences and one person who represents the perspective of either consumers or a culturally diverse group. In about half of the visits, a researcher from MIMH also joins the team. Each team has:

    Team members with experience conducting site visits.

    Team members with extensive familiarity with the goals and objectives of traditional mental health programs.

    Team members with who are familiar with the goals and objectives of COSPs.

    In addition to their participation in training by ROW Sciences in the site visit protocols and procedures, team are also expected to have prepared for each site visit by reading materials provided by each site describing the COSP and traditional program(s), including:

    The original proposal for the site being visited.

    The site-specific logic model.

    The site’s most recent quarterly report.

    A list of services offered by both the COSP and the traditional site(s).

    Additional materials sent by the site (e.g., descriptive brochures, mission statement, curricula, leaders’ manuals, bylaws, policies and procedures, rights and responsibilities, grievance procedures, etc.).

    Agenda. In general, the equivalent of 1 full day is needed for each organization/agency visited. However, the agenda for each site visit varies according to the needs, characteristics, and schedules of the local organizations/agencies. A contact person is designated by each site to work closely with ROW Sciences to identify key personnel to be interviewed, to schedule meetings with targeted interviewees, and to make logistical preparations that address the needs of both the site and the Coordinating Center.

    A typical site visit (see Sample Site Visit Agenda, Exhibit 7.1) consists of separate interviews or focus groups with the following individuals and groups:

    · For the overall site. (Focus on issues that might affect the research protocol, results, or interpretation of the results.)

    PI and relevant research staff. To discuss the progress of the initiative and anticipated problems.

    Consumer Advisory Panel. To discuss the issues above, as well as the initiative’s responsiveness to consumer input.

    Exit interview with the PI. At the PI’s discretion, an exit interview can be held to report general observations and provide an opportunity for greater clarification.

    · For each COSP and traditional service visited. (Focus on how services are implemented, and similarities, differences, and interactions between COSPs and traditional services, and different COSP models. Explore any differences among interviewees’ perceptions of program functioning and actual functioning.)

    Director of organization/agency. To discuss the organization and its services, the local service network, and how the organization interacts with the network, especially the COSP or traditional service(s). This should also include a tour, with the opportunity to observe program activities, as appropriate.

    — Supervisory staff interviews. To discuss the organization and its services from the managerial perspective. To gain a better understanding of similarities, differences, and interactions between the COSP and traditional service(s).

    Line staff interviews. To discuss the routine operations of the program from the direct service perspective. To gain a better understanding of similarities, differences, and interactions between the COSP and traditional service(s).

    Consumer focus group. To discuss participants’ experiences with and perceptions of the COSP and the traditional service(s).

    Diverse consumer interviews or focus group. To discuss the aforementioned issues with the goal of determining whether participants experience or perceive the COSP or traditional service(s) differently from other consumers because of their diversity.

    Each consumer focus group should consist of 8-10 participants. Group members should be typical of individuals who attend the program. Consumers from the traditional sites should not have attended the COSP. Although diverse consumers are welcome to participate in the larger focus group also, it is important that they are also offered an opportunity to speak to the site visitors separate from the larger group. This should allow people to express their thoughts and experiences without the pressure of feeling different or being judged.

    Consumers are paid to participate in a focus group or an individual interview. The amount of money is approximately the amount paid for a common protocol interview at your local site. (Participants sign both informed consent forms and receipts to receive their payments.) R.O.W. Sciences also provides refreshments or a pizza (or equivalent) lunch/dinner for focus groups if appropriate for the time at which the focus group is held.

    Exhibit 8-2 contains a description of the consumer focus group process for sites to use in recruiting consumer participants; Exhibit 7-3 depicts a sample informed consent letter for consumer focus groups.

    Interview Questions. Each interview or focus group consists of a series of semi-structured interview questions. This format allows the site visitors to skip some questions and pursue other topics in depth.

    Confidentiality. Although site visitors record the first and last names of all staff members interviewed, and the first names of all consumers interviewed, responses are never attributed to specific individuals without their permission. Only interviewees and site visitors are allowed to attend interviews or focus groups.

8.4 Traditional Mental Health Context

    Because part of the purpose of the site visit is to assess the context of traditional mental health services for program participants, several approaches are used to assess the mental health service delivery network for the geographic area in which the COSP is located.

    Bounding the network: For each site, site visit staff work with program personnel (generally prior to the site visit) to list all of the relevant mental health services in the area. To ensure that all categories of services are considered in this listing, we utilize a matrix of services which is provided as Exhibit 7-4.

    Assessing linkages: During the site visit, the individual most likely to know about the linkages of the COSP with mental health service agencies is asked to rate the extent of involvement with each of the agencies designated in the bounded service network in terms of (1) exchange of information; (2) referring individuals to the other agency; (3) receiving referrals from the other agency; and (4) exchange of resources with the other agency.

    COSP: The COSP representative is asked to rate all four kinds of relationships with each of the other mental health service delivery agencies.

    Traditional Mental Health Service Agency: The traditional mental health service agency is asked to rate all four kings of relationships with the COSP.

    Ultimately, we have information which can be aggregated to assess the degree of integration of the COSP with the mental health service delivery system, and to compare the extent of integration across all sites.

    Assessing Availability of Mental Health Services: In addition to linkage within the mental health system, another aspect of assessing the mental health service context relates to the availability of services. It is possible that an geographic area may boast an impressive array of mental health services, but due to over subscription, these services may be unavailable, or available with only long waiting lists. To get a sense of the availability of services within the area, we ask traditional mental health services representatives about the availability of a range of services that correspond to the service matrix.

8.5 Site Visit Reports

    Site visitors take notes during the visit and then prepare a written report. Approximately 6-10 weeks after the site visit, the report is sent to the PI, who is responsible for distributing the report locally. The PI has 2 weeks to send any factual corrections to the Coordinating Center. Those corrections are attached to or incorporated in the site visit report, which is then sent to the Federal representatives.

    EXHIBIT 8-1

    Sample Site Visit Agenda

    One COSP Site/One Traditional Site

     

    Day 1

    Day 2

    Day 3

    A.M. Travel to site

     

     

    8:30 - 9:30 Supervisory staff interviews (COSP)

    9:45 - 10:45 Line staff interviews (COSP)

    11:00 - Noon Diverse consumer interviews (COSP)

    8:30 - 9:30 Supervisory staff interviews (traditional)

    9:45 - 10:45 Line staff interviews (traditional)

    11:00 - Noon Diverse consumer interviews (traditional)

    Noon - 2:00 Lunch and meeting with PI and research staff

    2:30 - 4:00 Interview with director of COSP and tour

    Noon - 2:00 Lunch and travel to traditional site

    2:00 - 3:30 Interview with director of traditional site and tour

    Lunch Exit interview with PI

    Travel home

    4:15 - 5:45 Consumer focus group

    (Pizza) (COSP)

    6:15 - 7:30 Consumer Advisory Panel

    (Refreshments) (CAP

    3:45 - 5:15 Consumer focus group

    (Pizza) (traditional)

     

    EXHIBIT 8-2

    DESCRIPTION OF THE FOCUS GROUP PROCESS

    The COSP Coordinating Center (Missouri Institute of Mental Health and R.O.W. Sciences) will conduct a focus group with 8 to 10 mental health consumers at both the COSP and the traditional mental health service site(s). The focus groups will be composed of volunteers recruited from current participants in the program; there is no requirement that they be enrolled in the COSP study.

    The focus group will last 1½ hours, including time for refreshments. One site visitor will facilitate the group’s discussion using a series of semi-structured questions, while the other will record notes. The questions will elicit members’ perceptions about their participation in consumer-operated and traditional mental health programs, and the kinds of services they receive. Although participants will be asked to introduce themselves by first name, no additional identifying information will be collected and recorded comments will not be identified by their source.

    BENEFITS

    Participants will receive ($ amount) to compensate them for their time, as well as refreshments (or pizza).

    The results of the focus groups will be shared with participants, the PI and Consumer Advisory Panel (CAP) at each site, as well as the director of the program itself. The information may also be incorporated into an article to be submitted to a peer-reviewed journal that discusses the process of developing measures for an implementation/fidelity study.

    POTENTIAL FOR HARM

    The only potential for harm in the conduct of focus groups would come from a person divulging information about his/her mental health treatment to other participants. Because all participants would already be participating in mental health services, which by definition serve self-identified consumers of mental health services, little or no harm would result from this kind of revelation.

    EXHIBIT 8-3

    Program Name

    Address

    Consumer Discussion Group Consent Form

    § I understand that the purpose of the discussion group I participate in is to find out about mental health consumers’ experiences in and opinions of traditional and consumer-operated mental health services.

    § I also understand that the discussion group is part of the Consumer-Operated Services Coordinating Center (COSP) study, which is evaluating the effectiveness of traditional mental health services compared to traditional plus consumer-operated services.

    § I have been informed that the discussion group will last between 1 hour and 1½ hours and that discussion questions will be posed to the group as a whole, not to individuals.

    § I understand that I can participate in the discussion as much or as little as I like, including not participating at all. I also understand that if at any time during the group I feel uncomfortable, I can leave the room.

    § I understand that, except for my first name, the discussion leaders will not have any identifying information about me. All comments made by group members will be held strictly confidential and will not be identifiable by name.

    § I understand that I will receive refreshments and be paid (amount) for participating in the discussion group.

    § I understand that I may decline to participate in this discussion group and it will not at all affect my continued use of any kind of mental health services. If I do decide to participate, then I also understand that no matter what I say, or how much I say, it will not affect my continued use of mental health services.

    § I understand that this permission is valid only for DATE.

    § I agree to participate in the discussion group under the above conditions.

     

     

    Date: ____/____/____ Consumer Signature:

     

    Date: ____/____/____ Discussion Leader:

    Exhibit 8-4

    MENTAL HEALTH SERVICES NETWORK

     

     

    Major Local Service Agencies/Organizations

    Name of Agency/Organization

    Public Health Department

     

     

    Hospital

     

     

    Hospital 1 (Public)

     

     

    Hospital 2 (Private)

     

     

    Hospital 3

     

     

    Psychiatric Hospital

     

     

    Substance Abuse Agency

     

     

    Substance Abuse Agency 1

     

     

    Substance Abuse Agency 2

     

     

    Substance Abuse Agency 3

     

     

    Mental Health

     

     

    Outpatient Services

     

     

    Clubhouse or Rehabilitation Programs

     

     

    Assertive Community Treatment Programs

     

     

    Housing/Supported Housing

     

     

    Respite Care

  1.  

     

    Department of Social Services

  2.  

  3.  

    Social Security

  4.  

  5.  

    Vocational/Prevocational Program

  6.  

  7.  

    Housing Authority

  8.  

  9.  

    COSP programs, other than the one in the study

  10.  

  11.  

    Homeless Shelters

  12.  

  13.  

    Other (specify)

  14.  

 

EXHIBIT 8-1

Sample Site Visit Agenda

One COSP Site/One Traditional Site

 

 

Day 1

Day 2

Day 3

A.M. Travel to site

 

 

 

 

 

 

8:30 - 9:30 Supervisory staff interviews (COSP)

9:45 - 10:45 Line staff interviews (COSP)

11:00 - Noon Diverse consumer interviews (COSP)

8:30 - 9:30 Supervisory staff interviews (traditional)

9:45 - 10:45 Line staff interviews (traditional)

11:00 - Noon Diverse consumer interviews (traditional)

Noon - 2:00 Lunch and meeting with PI and research staff

 

2:30 - 4:00 Interview with director of COSP and tour

Noon - 2:00 Lunch and travel to traditional site

 

2:00 - 3:30 Interview with director of traditional site and tour

Lunch Exit interview with PI

 

Travel home

4:15 - 5:45 Consumer focus group

(Pizza) (COSP)

 

6:15 - 7:30 Consumer Advisory Panel

(Refreshments) (CAP)

3:45 - 5:15 Consumer focus group

(Pizza) (traditional)

 

 

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