ELEMENT
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DEFINITION
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EXTRACTED ISSUES
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Structure
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Consumer
operated
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Consumers
constitute the majority (at least 51%) on the board or group which decides
all policies and procedures.
With
limited exceptions, staff consists of consumers who are hired by and
operate the COSP.
Consumers
have control of the operating budget.
Role
opportunities for participants may include board and leadership positions,
volunteer jobs and paid staff positions.
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Board
of Directors or decision-making group
Staff
composition
Budget
control
Leadership
roles for participants
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Participant
responsive
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A
COSP responds flexibly to the needs of participants.
Consumers
have ways to indicate dissatisfaction with their program and to have
grievances addressed.
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Flexible
program.
Process
for complaints or grievances.
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Linkage
to other supports
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A
COSP offers linkage to other supports, with referrals to other community
services, and networking with other consumer groups.
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Linkage
and referral to other services.
Networking
with other consumer groups.
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Environment
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Accessibility
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Consumers can walk to the COSP or get there by
public transportation; or the program comes to the consumer.
Hours of operation are geared to the needs of
participants.
COSP programs are either free or charge a nominal
fee. Program use is not dependent on ability to pay.
Efforts are made to insure that consumers with
physical and sensory as well as psychiatric disabilities can participate
in programming.
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Transportation to the COSP
Hours of operation
Cost of program or activity.
Accessible to persons with physical and sensory
disabilities.
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Safety
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The
COSP provides a noncoercive milieu in which fears due to past
traumatization are appreciated and assuaged, including trauma induced by
the mental health system.
There
is no threat of commitment, clinical diagnosis, or unwanted treatment
except in cases of suicide or physical danger to other participants.
CLUSTER
FOR DROP-IN: Norms/rules to protect the physical safety of participants
are developed by consumers for consumers -- either by the participants
themselves or by consumer staff -- and they are agreed to by all
participants.
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De-emphasis
on clinical treatment or diagnosis.
Policy
for calling police or other agents for involuntary treatment or arrest.
Policy for expulsion or suspension from the COSP.
Rules
of daily behavior.
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Informal
setting
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Working
toward common goals in a comfortable setting creates a sense of belonging
and support.
Rigid
distinctions between provider and client do not exist.
While
some program components may be structured, there remains a sense of
freedom and self-expression. The COSP provides a sense of fellowship, in
which people care about each other and create community together.
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Physical
environment.
Relationship
between staff and participant.
Spontaneity
of participant behavior.
Observed
goodwill among participants.
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Reasonable
accommodation
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CLUSTER
FOR DROP-IN: No timeline is attached to participation in the COSP. No
pressure to join and no time limit to participation. Schedules and tasks
can be flexible and adapted to individual needs.
CORE
CONSENSUS: Reasonable accommodation to disabilities of all kinds is
advocated and practiced in program and work settings.
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Length
of time allowed for participation.
Requirements
for membership or participation.
Reasonable
accommodation or flexibility in staff schedules and tasks.
Reasonable
accommodation for all disabilities.
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Belief Systems
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Peer
principle
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Relationships
are based upon shared experiences and values.
They
are characterized by reciprocity and mutuality. A peer relationship
implies equality, along with mutual acceptance and mutual respect.
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Shared
values, shared consumer experience
Relationships
peer to peer, participant to staff
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Helpers principle
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Helping oneself and others is a corollary of the
Peer Principle. Working for the recovery of others facilitates personal
recovery.
Help or advice is friendly rather than
professional, and does not demand compliance.
All services at COSPs are based on peer-to-peer
relationships, as part of the Peer Principle.
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Peers help peers/
Help does not require compliance.
Skilled services provided peer to peer.
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Empowerment
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PERSONAL EMPOWERMENT
Empowerment is honored as a basis of recovery. It
is defined as a sense of personal strength and efficacy, with
self-direction and control over one's life.
Consumers are expected, but not forced, to be
accountable for their actions and to act responsibly. Self-reliance is
encouraged.
GROUP EMPOWERMENT
Belonging to an organized group that is recognized
by the larger community contributes to the personal empowerment of the
individuals within it. Both personal empowerment and group empowerment can
be going on at the same time.
As a group, the COSP has the capacity to impact
the systems that affect participants' lives. Consumers participate in
systems level activities at their own pace.
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Personal confidence, efficacy, self-direction,
decision-making
Individual accountability and independence
Pride of membership/ownership of COSP.
COSP effect on systems.
Participant participation in system activities
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Creativity
and Humor
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ARTISTIC EXPRESSION
Many consumers find
artistic expression helpful in their recovery process.
As a result, some COSPs offer group and individual opportunities
for artistic expression.
SENSE OF HUMOR
An ability to laugh
at oneself and at difficult situations is commonly found among COSP
participants.
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Use of art and other creative expression.
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Choice
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Participation
is completely voluntary, and all programs are elective and non-coercive.
Choice of services includes the right to choose none.
Consumers
are regarded as experts in defining their own experiences and choosing
COSP or professional services that best suit them. Problems to be
addressed are those identified by the consumer, not by professionals.
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Choice
in services used.
Right
to choose no services.
Participant
view of personal experience
Participant
assessment of personal issues
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Recovery
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We
believe in recovery. The recovery process is different for each
individual. It is never
defined rigidly, or forced on others by a COSP.
Recovery
describes a positive process that acknowledges strengths and enhances well
being.
COSPs
regard recovery as a normal human process which is unique for each
individual. And like all human processes, recovery takes time and involves
a whole range of human experiences.
It
may include ups and downs and also periods of no apparent change.
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COSP
definition of recovery.
Recovery
as a positive process, a strengths model.
Recovery
is unique for each individual. Recovery involves both time and a range of
experiences.
Acceptance
of non-linear nature of recovery, times when no improvement is seen.
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Acceptance
and respect for diversity
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Empowerment
and hope are nourished through acceptance of persons as they are
"warts and all."
All
behaviors are understood in ordinary human terms, never according to
clinical interpretations.
Consumers
respect each other for the person they are rather than for the person they
should be.
Every
person is afforded acceptance, respect and understanding based on his/her
uniqueness and value as a human individual.
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Behavior
is regarded in common human terms rather than clinical labels.
Stigmatizing
attitudes and clinical labels are avoided.
Participants
are not required to change their fundamental views of self.
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Spiritual
growth
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Spiritual
beliefs and subjective experiences are respected, not labeled as symptoms
of illness.
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Spiritual
beliefs and affiliations.
Subjective
experiences are respected
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Peer Support
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Peer
support
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Individual
COSP participants are available to each other to lend a listening ear,
with empathy and compassion based on common experience.
Similar
support may be provided in formal support groups.
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Individual
and informal peer support.
Peer
support groups.
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Telling
our stories
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Personal
accounts of life experiences are embedded in all forms of peer support and
education.
Open
discussion occurs in peer support groups or among individuals.
Sharing
these life experiences may also be a tool for public education, thus
becoming an effective means of eliminating stigma and making consumers
more accepted within their community.
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Personal
testimony in peer support and education
Spontaneity
and free expression in conversation or meetings.
Personal
testimony in public forums.
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Consciousness
raising
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Small
support or conversation groups allow participants to tell our
stories or share common experiences. These groups may be formal peer
support groups or casual, ad hoc, conversations.
Participants
receive information about the consumer movement.
New
participants discover commonality with others, and this often produces
the first dramatic change in perspective from despair to hope and
empowerment.
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Sharing
experiences in groups.
Learning
about the consumer movement.
Positive
change of perspective as a result of participation.
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Crisis
prevention
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Involuntary
commitment is minimized through individual or group peer support, or by
peer counselors, or by education and advocacy,
by addressing problems before they escalate, by addressing problems
before they escalate.
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Rate
of hospitalization before and after joining the COSP.
Effect
of peer support or counseling
Effect
of peer support or counseling.
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Peer
mentoring and teaching
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Consumer
staff or leaders serve as positive role models to other consumers and to
each other. Individual participants act as mentors to others.
Consumers
teach skills and strategies to other consumers, either formally or
informally.
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Peer
leaders as role models.
Peers
act as mentors.
Peer
as teachers in formal classes or trainings.
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Education
/ Advocacy
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Accepted revision 11/10/1999
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Self-management/
problem solving strategies
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COSP
programs or individuals teach and model practical skills and promote
strategies related to personal issues, treatment, and support needs.
The focus is on practical solutions to human concerns.
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Formal
educational programs for problem solving.
Informal
exchange of personal experience to enhance individual problem solving
abilities.
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Education
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Consumers teach and are taught skills that
will equip them for full participation in the community such as, daily
living skills, vocational skills, job readiness, communication skills,
relationship skills, goal setting and assertiveness skills.
Consumers develop and improve social skills
in a natural social environment.
This is often a first step toward creating
or re-establishing valued roles in the community and reintegrating into
community life.
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Formal
or informal teaching and practice of daily living skills, vocational
skills, job readiness, communication skills, goal setting and
assertiveness skills.
Participants
reintegrated into the larger community.
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Self
advocacy
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COSP
participants learn to identify their own needs and to advocate for
themselves when there are gaps in services.
COSP
participants learn to become active partners in developing their own
service plans with traditional services to meet
their needs.
Consumers
learn to deal effectively with entitlement agencies and other services.
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COSP
participants are better equipped to propose alternative services to meet
their needs.
COSP
participants are more assertive in insuring that they receive the services
they need from traditional agencies. COSP participants are more
effective in obtaining services needed from other community agencies.
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Peer
advocacy
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COSP
participants assist other consumers in resolving problems they may
encounter on a daily basis in hospitals and
the community such as problems with treatment providers, community service
agencies, family members, neighbors, landlords, other peers, etc.
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Individual
participants advocate for each other.
Formal
advocacy program.
Outreach
to participants.
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Systems
advocacy
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The
COSP uses a number of tools to bring about changes at the systems and
legislative level. These
tools may include testifying before the legislature, participating on
boards, committees, and task forces, communicating directly with policy
and law makers.
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Systems
advocacy by the COSP or by COSP members or
graduates.
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Community
Education
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The
COSP uses public education or public relations to bring about positive
changes in public attitude.
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Public
education efforts.
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