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Steering Committee Notes: May 7, 1999

Participants

Richard Beaulaurier Crystal Blyler Jean Campbell Patrick Corrigan Jaime Delgado Janine Elkanich Susan Essock Stephen Fischer Louetta Hix Matt Johnsen Anika Keens-Douglas Sarah Lickey Sandy Lint Danyelle Mannix Betsy McDonel Carol Mussey Jo-Anne O'Connor Ruth Ralph Joe Rogers Sally Rogers Mark Salzer Carol Silverman Greg Teague Sharon Togut Daphne Walker-Thoth Brian Yates Tom Summerfelt

Communications Problem

Carol Silverman is not receiving information being sent out through the COSP admin list serv.

Review of Service Utilization & Program Activity - Brian Yates

Brian proposed adoption of the service utilization items (#1-20) with a few minor word changes. Janine second the motion. It passed with no objections with the understanding that the exact recall period throughout the CP may change.

Susan proposed that the SC accept the proposed program activity items with the understanding that any study site can choose to have the respondent name the program they participated in and that the site will do the coding. There were no objections.

Logistics Subcommittee Report -- Sally Rogers

Sally explained that at the first SC face-to-face meeting, sites had agreed to move to 0, 6, and 12 month collection points. This posed a problem for Florida, California, Connecticut, and Tennessee. Consultation was sought from Carol Siegel about whether or not to have common points or multiple points. She suggested common points. Sally consulted with two statisticians at her center who also recommended common points.

Sally opened a discussion about common data waves. It was decided on the next Logistics Subcommittee Thursday, May 13 at 3 p.m. ET that consideration be given to a 0, 4, 8 month interval or a 0, 4, 8, 12 month interval and that Carol Siegel be invited to be part of that call. In the meantime, people can consider what will work at their sites.

The sites present on the teleconference discussed the following issues related to their site participation in common collection points:

California - it is important that this site have an earlier collection schedule because it tends to see very major effect very rapidly.

Connecticut - will have a collection point at 4 months, but it is willing to add the 6-month interval.

Tennessee - will capture baseline prior to the intervention at 1 and 11/2 months and then at 4 and 10 months.

TN is willing to work around common data collection time frames. 0, 4, 8, and 12 month strategy is preferred because our intervention lasts approximately 4 months and because of human recall issues. However, by conducting baseline interviews 1-2 months before the intervention begins would allow us to line up with a 0, 6, 12 month approach .

Maine - can be flexible, but is not sure it budgeted for 4 interviews in one year. (Jean pointed out that the interview cycle will run over two budget periods.)

Illinois - wants to capture information 3 times in Year 1 so either proposal will work for this site.

Pennsylvania - 4 interviews will be okay, but it wants to collect data after the 12-month point. The 4-month point is a little early for this site. It budgeted for 3 collections. Someone mentioned that looking beyond 12 months would enable the COSP to capture cost savings.

After some discussion about the Logistics Subcommittee Group's heavy work load, Ruth moved that the work stay within the Logistics Subcommittee instead of being farmed out to another work group and that if subgroups are needed that they be subgroups of the Logistics Subcommittee and that weekly Logistics Subcommittee teleconferences be held. The motion was seconded by Carol. There were no objections.

Ruth then moved that Matt Johnsen or Joe Sonnefeld serve as co-chair along with Daphne of the Logistics Subcommittee Group. The motion was seconded and passed with no objections.

Review of Religious/Spirituality Questions - Sarah Lickey

Sarah proposed that the religious/spirituality questions currently in the CP be replaced with those recommended by the Cultural Competency & Diversity Task Force that were posted on the website. These questions were taken from an existing scale. Crystal seconded the motion. A lengthy discussion ensued when Joe Rogers indicated that he didn't think this was germane to our research. Joe objected strongly to the motion. A vote was taken. Thirteen voted in favor of the motion and 1 voted against it. The motion passed.

Review of Health Questions - Sally Rogers reporting for Brian McCorkle

Brian conducted a pilot to see if the two questions in the CP correlated with the SF 12. The correlation was not high enough. Sally moved that the two questions in the CP be removed and replaced with the SF 12 or the longer SF 36. There were no objections. The motion passed.

Sally then moved to include the SF 36 if the SC thought health, emotional status, and functioning questions were important enough to warrant the addition of more questions. A lengthy discussion ensued. Key points were (1) questions about whether or not the SF 12 or SF 36 had been validated on the homeless population. Carol Silverman suggested that those questions that are not appropriate for homeless individuals be skipped when administered to homeless individuals, (2) the SF 12 is not interchangeable with the SF 36, (3) the scales were developed for the general population but have been administered to people who are mentally ill, and (4) more information may be needed on internal validity and subscales on the SF 12. The motion to include the SF 36 in the CP did not pass. There were 10 votes against the motion, 1 vote in favor of the motion, and 3 abstentions.

Sally the moved to include the SF 12 in the CP. The motion was seconded and passed with 1 vote against it from Joe Rogers. Joe voiced his strong objection and left the teleconference. Several SC members said that Joe's comments felt like attacks. Betsy and Jean will follow up with Joe.

Review of Symptoms and Symptoms Distress Scales - Mark Salzer

Mark moved that the work group return this topic for larger discussion call involving all SC voting members. Janine seconded. Betsy stated that the SC voted to include symptoms, but there wasn't strong consensus. This has made the task of the work group difficult, and we need to confirm or disconfirm the original vote that was taken. She suggested having a call before Friday's regularly scheduled SC teleconference. The motion passed with no objections. The teleconference will take place Wednesday, May 12th at 3:30 p.m. ET and will last for one hour. Tom suggested that SC members review the pros and cons document that was prepared and posted on the list serv.

Ruth indicated that she withdrew her recommendation to CAP for inclusion of Basis 32. She suggested that if it is decided that symptoms will be measured, an instrument needs to be identified.

Mark proposed that since no one has submitted life distress or distress in other areas scales that it not be included in the CP and that sites interested in this area work on it outside of the CP. The motion was seconded and passed with no objections. Tom asked that the Coordinating Center compile a list of the topics sites might be interested in collaborating on in clusters, such as poverty, distress, substance abuse and put it on the list serv.

CP Time line

Jean pointed out that each time we don't vote on the CP, it pushes the time line back. We are now one month behind. Jean said this is fine and she has no problem changing the time line, but that she brings it up as part of her responsibility as moderator.

Other Issues

There is a demographic question that needs to be addressed and one last question on health that will be rolled over to the next regularly scheduled SC teleconference Friday, May 14th at 2 p.m. ET.

Adjournment

Up ](May 12, 1999)

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