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Community-based peer support service outcomes can now be rigorously measured using a validated, consumer-developed protocol. The Community-Based Peer Support Outcomes Protocol Project, a five-year National Institute for Disability Rehabilitation Research project funded under a subcontract from the National Research and Training Center on Psychiatric Disability, University of Illinois-Chicago (1996-2001), developed, validated, and field-tested a modularized outcomes protocol that measures peer services for persons with mental illness receiving community-based supports. POP modules include: (1) Demographics (2) Service Use Ø Service Use Scale Ø Crisis Support Scale (3) Employment Ø Employment Scale (4) Community Life Ø Community Life Scale I (Living Environment) Ø Quality of Life Subscale (A. Lehman) Ø Community Life Scale II (Social Relationships) Ø Discrimination Scale Ø Crime Demographics Ø Social Acceptance Scale (Well-Being Project, J. Campbell) (5) Quality of Life Ø SF-12 Health Survey (J. Ware) Ø Quality of Life Sub-scale (A. Lehman) Ø Subjective Quality of Life Scale Ø Program Quality of Life Scale (6) Well-being Ø Personhood and Empowerment Scale Ø Recovery Scale (7) Program Satisfaction Ø Program Satisfaction Scale Ø Coercion Scale (V. Wieselthier) POP was developed through a comprehensive review of consumer outcomes instrument and compilation of indicators, and the facilitation of several consumer focus groups using concept-mapping to rank and cluster domains and indicators (The Concept System web site @ http://www.conceptsystems.com). Field-testing of the instrument involved extensive participation of service recipients from the St. Louis Empowerment Center, a consumer-run drop-in center, and Independence Center, a community-based peer support clubhouse. An assessment of the data needs of community-based peer support programs was also conducted with over 30 consumer-run organizations participating from across the United States. Download materials from this project: POPP Question-By-Question Guide Report of the Psychometric Properties of POPP POPP PowerPoint Slide Presentation
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Missouri Institute of Mental Health
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